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Sat, Oct 4, 2014
About This Activity
Jim and I began Friends of DBA seven years ago to fight a disease that we were powerless to defeat: Diamond Blackfan Anemia, a rare disease affecting infants and children. Our son, Trevor, who is 17, was diagnosed with DBA at 18 months old. DBA patients are unable to produce red blood cells and require steroid treatments and/or blood transfusions. There is currently no cure.
Our goal is to generate funds for research to find a cure for Diamond Blackfan Anemia (DBA). Our additional purpose is to provide DBA Families with education when necessary and to assist DBA Families in crisis.
Why do we fundraise? Over the past few years people have asked me why I hold fundraisers to which I logically answered, “because my son has DBA”. I never really thought much more about it until July of 2010 when my family and I experienced Camp Sunshine for the first time and our whole world of “why” and “how come” was turned upside down! A family of five from Cleveland who had treated DBA as simply “a pill to swallow” came face to face with 53 other families who gathered to support and educate each other on how to navigate the bumpy road that is DBA. Initially, we felt like outsiders as we observed the diverse emotions in that room. Throughout the week we found ourselves unexpectedly conflicted. Our son had his ups and downs but never had he gone through what some of these families face on a daily basis. And then one day during Camp it hit me as I was working through a wide range of emotions…I don’t fundraise just for Trevor…I do it for ALL OF THESE PEOPLE, TOO! These families learn about the latest treatment recommendations, about what grants are being funded and who is working on what research to find a cure! These reasons became OUR reasons to fundraise. As Jim and I prepare for yet another golf outing, we are usually filled with frustration, fear, and exhaustion until the day of the event. Then, that day, as we look out upon our supporters and donors, our friends and family, we know that this is good and that this is right! Fundraising is a humbling experience that gives us a sense of pride and accomplishment and creates an overwhelming feeling of gratitude for those who come out to support our family through our son’s journey with DBA. So now, when I am asked why I fundraise I just smile, think back to Camp Sunshine and all those wonderful families and say “why not?” Thank you for your support, Jim & Carol
Event schedule and times
Start Time 9:00 am- Race Day Registration and Packet Pick Up 10:00 am- 5K Start (Chip Timed)
Water station at halfway point; Post Race Celebration T-shirts guaranteed to all participants pre-registered by Sept. 20, 2014
Awards: Given to Top 3 overall males and Top 3 overall females.
Plus age group top 3 runners for the following age groups: 9 and under,10-14, 15-19, 20-29, 30-39, 40-49, 50-59, and 60 and older.
Now Accepting Sponsors!
Becoming a sponsor of Friends of DBA offers amazing benifits. It gives your company or organization a low-cost opportunity to: build new and deeper community networks, enhance your credibility, educate race-goers about your products or services, and fulfill your community partnership goals. Even families can become a sponsor! Choose the level that’s right for you:
$1,000 – Diamond Your logo printed on race t-shirts (5) FREE Race Registrations with t-shirts
$500 – Ruby Your business name/patron name printed on race t-shirts (2) FREE Race Registrations with t-shirts