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Glow Run for Jase (Race 4 Jase)
Sat, Nov 10, 2018
About This Activity
We are in a race to save Jase’s life!
Jase Umphers of Fulton, MS is a two year old little boy that has been diagnosed with Neimann Pick Type C Disease. This disease is a rare progressive genetic disorder which the body can not properly metabolize cholesterol and fats. There is no cure for this disease. Every two weeks, Jase, and his mother Hannah, fly to Chicago for treatment which is not covered by his insurance. Above all we ask for prayers for Jase and his family and we humbly ask for any donations you would like to give to help with the expense of his continued treatments. Thank you!
Niemann-Pick Type C (NPC) is a rare genetic disorder. NPC blocks the bodies ability to move cholesterol inside of cells the right way. It causes severe trauma to the brain and body, creating a whole list of horrible things in kids that no child should have to face - dementia, seizures, choking, not being able to talk or move at all, and then passing away. NPC is also called “Childhood Alzheimer’s disease”. Without help, Jase will experience horrible things one after another for the rest of his life, and there will be nothing we can do to stop it. We know for Jase that time is of the essence and he cannot wait. We have to act now if we are going to help save his life.