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Colton's Quest 5K/10K
Sat, Mar 29, 2014
About This Activity
Heartland Endurance Sports, Franklin's Innovations class, Colton Darst's family and friends are uniting to raise money for medical equipment and treatments Colton needs to gain his mobility.
On September 20, 2012, Colton Darst was born. On this special day, they were expecting a beautiful healty baby girl. Unbeknownst to us until the delivery, our baby girl was a incredibly handsome baby boy. We were also blind-sided with the unexpected diagnosis that our newest child had severe medical issues. At birth, Colton was diagnosed with a massive double hernia, and a condition known as Arthrogryposis. This disease is characterized on the outside by severe contractures of the joints in the arms and legs. Colton had these severe contractures in his legs and in his wrists and thumbs. This condition also affects numerous organs throughout the body, and can have extremely negative effects on organs. Fortunately, Colton was blessed with only the external disabilities. At 5 weeks old, Colton had his first surgery to repair his double hernia. He has also had 2 separate surgeries on his ankles, one of which was a major reconstruction of his feet, including bones, muscles, tendons and ligaments. Colton has also endured over 6 months of painful castings of his legs. These surgeries and castings will hopefully allow Colton to one day walk. We say hopefully, because the doctors have said that at this point in time, it is a 50-50 chance. Along with the problems with his legs, Colton has no use of his arms. Since birth, Colton has not been able to move his arms. He has undergone numerous genetic tests, many of which cost thousands of dollars. These tests have determined that Colton has a genetic defect that prevent him from ever being able to use his arms. This defect makes his arms "too heavy" for his body to move. There is no cure for this defect. We have, however, found a ray of light in regards to his arms. A doctor at Nemours Childrens Hospital in Wilmington, Delaware has developed an very innovative "machine." This machine has been nicknamed "magic arms." These "magic arms" are an external system of levers, pulleys, rubber bands that eliminate the effects of gravity of arms. These "magic arms" could possibly help Colton to gain some semblance of having "normal" arm movement. However, these "magic arms" are not cheap. They cost several thousand dollars. Along with the cost of the "magic arms", there is also the added cost of having to travel to Delaware several times for several days at a time. To date, our medical bills for Colton have already topped $200,000. With at least a dozen more surgeries to go that we know of, these bills are only going to skyrocket. If we are able to get Colton to Delaware, he will require new "magic arms" every year as he grows out of them. Our goal is for Colton to one day be able to walk unassisted, and to be able to use his arms, assisted or unassisted. To do this, we need YOUR help. Help us to make his future bright and limitless.
Event schedule and times
Race Day Schedule of Events:
7:00 am – 8:15 pm Race day registration and packet pick-up 8:00 am All volunteer meeting at finish line 8:45 am Mandatory pre-race meeting at finish line 8:45 am Invocation 8:45 am SSB 8:45 am Security meeting by camp building 8:45 am Timing system finalized 9:00 am Cannon Start 9:20 am First 5K finisher 9:45 am First 10K finisher 10:00 am Last 5K finisher 10:00 am 5K Awards 10:30 am 10K Awards 11:00 am Last 10K finisher
Packet Pickup: Packet pickup will take place in Franklin on Friday, March 28, 2014, from 5:00 PM-8:00 PM. Please make all efforts to pick up your packet at this time. An email with packet pickup directions/location will be sent when plans for this are finalized.
Race Day: We will be onsite by 7:00am for packet and chip pickup, as well as race day registration. To ensure we can start the race on time, please plan to be onsite at least an hour prior to race to pick up your timing chip. Please note, we may not be able to allow registrations within 45 minutes of the race starting, or check in within 30 minutes of the race start. Check-in will be at the blue tent near the finish line.
Parking: The park has parking available. Should the parking become full, you will be directed where to park.
Please do not hesitate to email firstname.lastname@example.org if you have any questions, concerns, or are celebrating a special day with us.