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CURE fop 5k
Sat, Nov 1, 2014
About This Activity
please join us and take part in anexciting community event That raises money and awareness for a cure! This 5k is held to help people like my son Wayne above and 5 yr old princess Sienna whom you can meet at the race or see her on facebook at wayneswishingwellcurefop, www.ifopa.org visit her page siennasflowergarden.com Sienna and Wayne suffer from a rare bone disease (f.o.p.) that turns their soft tissue to bone. The extra bone grows across theire joints locking them in place. Stealing their childhood! Wayne has grown extra bone in his upper leg and can not straighten that leg or stand straight. the exciting news is that you really can make a difference! Clinical trials for a cure have started and research is making great progress! We are close to a cure! Please, we hope you will join us, bring your friends..help us make f.o.p. nothing more than a story in our children's past !
Event details and schedule
check in starts at 8:00 a.m. / Race starts @ 9:00 a.m.
beautiful scenic course on Kent Island Cross trail with plenty of parking