Our 8 year old daughter Kadence was born with a very rare genetic disease called Spinal Muscular Atrophy or SMA. Kadence was diagnosed at 18 months old and it was a disease we had no knowledge of and hadn't ever even heard of. SMA is characterized in different types. Type 1 children pass away before two years of age. Type 2 children are confined to a wheelchair and never walk. Type 3 children can walk until their muscles atrophy enough to make them wheelchair bound. Kadence has Type 3 SMA and is still walking right now. She has a hard time jumping, running, and keeping up with peers but she is a spunky determined 8 year old and we are hoping to get this disease closer to a cure by hosting these races and raising money for SMA.
SMA affects approximately 1 in 10,000 babies, and about 1 in every 50 Americans is a genetic carrier. SMA can affect any race or gender. SMA is the number one genetic killer of babies under two and no one even knows about it.
Kids like Kadence with SMA have difficulty performing the basic functions of life, like breathing, swallowing, talking and even walking. However, SMA does not affect a person’s ability to think, learn, and build relationships with others.
Though there is currently no approved cure for SMA, there’s great reason for hope. We know what causes SMA and what we need to do to develop effective therapies, and we’re on the verge of major breakthroughs that will strengthen our children’s bodies, extend life, and eventually lead to a cure.
All proceeds from this race will benefit the Gwendolyn Strong Foundation and Cure SMA.
Bring the family-fun for all ages and fitness levels!
BE SURE TO STAY FOR BREAKFAST TACOS AFTER THE RACE!!!!!!